Wednesday, May 23, 2012


Sometimes I am on top of my game with Mighty Z. I sometimes can juggle better then most clowns at any given circus.I will be calling, emailing, researching, demanding, going full throttle on everything my Mighty Z needs,and then sometimes just the thought of having to talk on the phone makes me want to run for the hills.

I have been on a "figure out whats going on with Mighty Z" marathon for six months, and now I feel the need to go into hiding.

I often joke that an insane asylum or prison sounds like a spa to me hey can you blame me? You get three hots and a cot right? No one to cook, clean, hook up to machines, listen for alarms, deal with insurance, DME companies,therapies, and doctor offices. AAAAAAhhhhhhhhhh if I am good maybe they will put me in solitary confinement with a good book .

I feel like I go in spurts of being "productive" in the care of Mighty Z to the I will deal with them later manana attitude.

I do feel guilty when I am in the latter mode but then I think we also need a time to gather our reserves, count our chickens and recoup for what you know will be coming up next.

Not to say that I am not still up many nights with Mighty Z's machines. I say it that way because Mighty Z just informed me that she never even notices that she has had a breathing treatment, been repositioned a million times, or infact had been put on oxygen. When she does notice in the morning she has been on oxygen, and she is bright eyed and bushy tailed she often yells "SCORE no school for me today" I on the other hand would love to put that bushy tailed kid back to bed so I can get a couple hours of sleep.

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1 comment:

  1. You could always pull off an "unarmed" robbery. I don't think you'd get much time, and maybe a short vacation :) But Mama, what would your beautiful family do without you?? And I know you too would go stir crazy! You keep on keepin' on! My saying since springtime has hit..."one flip-flop in front of the other!" Love ya, Jody